New Guide Provides Adults With Down Syndrome Roadmap For Care

 As individuals with Down syndrome live longer, a newly released guide is offering first-of-its-kind advice to families about how the chromosomal disorder should impact their medical care. Read More >

New Push Underway To Train Doctors, Dentists On Developmental Disabilities

 Groups representing the nation's doctors and dentists are committing to better prepare students in their fields to treat those with IDD in a move that could lead to major improvements in care. Read More >

Feds Reverse Course On Alzheimer's Drug After Outcry From Down Syndrome Advocates

 Federal officials are backing off a plan that would have kept people with Down syndrome from accessing a new Alzheimer's treatment even though they're predisposed to the disease. Read More >

Disability Service Providers Struggle To Compete For Workers

 With pay rates that are less than fast-food wages, disability service providers can't find staff and are closing group homes and struggling to maintain services as a result. Read More >

People With Disabilities Left Behind In Push To Overcome Pandemic

 

Millions of Americans with disabilities are being overlooked during the pandemic recovery, stuck at home without therapy or social programs, and struggling to book COVID-19 vaccinations. Read More >

She Has Down Syndrome, Then Got COVID-19. Could Amanda Hall Learn To Walk Again?

 

Cindy and Walt Hall are used to fighting for their daughter. Their toughest battle came when she caught the coronavirus. Read More >

Parents Of High-Risk Students Face Tough Decisions Amid Delta Surge

 With many schools making masks optional, parents of children with disabilities and other health issues that put them at high risk for COVID-19 are left with few options to keep their kids safe. Read More >

Children Are Waiting Longer In The ER For Mental Health Care, Study Finds

 Kids who visit emergency rooms for mental health crises are increasingly likely to spend more than six hours there, a noisy, chaotic experience that experts say can be traumatic. Read More >

Mock Clinic Helps Those With Special Needs Prepare For COVID-19 Vaccine

 After a parent shared the story of her son being held down to get his vaccine, a mock clinic was set up to give others with developmental disabilities a trial run before receiving their shots. Read More >

Push Is On For States To Ban Organ Transplant Discrimination

 States are passing laws that would prevent people with Down syndrome, autism and other disabilities from being denied transplants solely because of their conditions. Read More >

COVID-19 Vaccination Clinic Designed To Be Sensory Friendly

 With luxury boxes repurposed as "quiet spaces" complete with fidget toys and weighted blankets, a visual schedule of events and more, an NFL stadium was transformed into a unique vaccine clinic. Read More >

COVID-19 Cases Plummet Among Those With IDD Who Are Offered Vaccines

 New data suggests that COVID-19 infections among people with intellectual and developmental disabilities and the staff who serve them drop dramatically once they are eligible for vaccines.   Read More >

Group Homes Left To Fend For Themselves In Quest For Vaccines

 The leaders of some group homes have made hundreds of phone calls, sent staff driving hours and cut deals with anybody they could to secure COVID-19 vaccines for their staff and clients. Read More >

Pandemic Could Hurt Home-Based Care For Kids With 24/7 Needs

 Every state now offers a program providing home health care to kids with severe needs, but the pandemic has worsened worker shortages and raised fears that tightening budgets might mean cuts. Read More >

Disability Discrimination In Health Care Under Scrutiny

 Federal officials are weighing a rewrite of regulations designed to ensure that people with disabilities do not face discrimination from medical providers amid concerns about unequal access. Read More >

New Program Aims To Train Doctors On Developmental Disabilities

 

A new effort is underway to better prepare future doctors and other health care professionals to treat people with intellectual and developmental disabilities. Read More >

For Medically Fragile Children, Pandemic-Induced Supply Shortages Continue

 Suppliers and parents began reporting shortages — most notably of ventilator circuits — early in the pandemic. Now, they say the problem is ongoing and kids are paying the price. Read More >

Plexiglass And Masks Greet Kids With Disabilities Attending Class In Person

 Students with disabilities are adapting, teachers say, to the many ways that in-person learning is different this year. Read More >

Children Missing Out On Developmental Services Because Of Labyrinth System

 To get services for their children, parents often must navigate a dizzying array of health care providers, special education entities and insurance programs, often with little support or guidance. Read More >

Siblings Rally Around Their Sister With Down Syndrome

 Even as their sister with Down syndrome sees her health deteriorate from dementia, a tight-knit group of siblings is determined to care for her themselves, taking on rotating shifts each day. Read More >