What You Need to Know: Information and Support for Parents of Children with Kidney Disease

When I was packing to go home from the hospital after the birth of our second child, my husband and I were told by the doctor on the phone that our new baby had an “incurable kidney disease” that would “require her to have a kidney transplant early in her life.” The doctor advised us to consult with a nephrologist. I laugh a little bit now at my response: “What’s a nephrologist?” We were shocked, and we were just as devastated when we learned three months later our son had the same condition. It’s been a long way from that day at…
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